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SS Big Red's avatar

I think you were smart to get it done. I would recommend anyone with the means, to find out, as much as possible, how their mind/brain works. Life is difficult. Knowing why you act/think in certain ways can help you navigate life to the best of your ability. Not everyone is brave enough to delve deep and accept themselves, both strengths and weaknesses. It takes even more to address them. You have done all of this, and continue to do so. We all should, neurotypical or not. I wouldn’t downplay it, or advise people not to follow this path, if then can. Improve yourself, improve the world.

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Yvonne Federowicz's avatar

This reply got really long! Oops.

Getting a diagnosis can be helpful if good science is actually being done on the relevant condition. From what I've read in your writings, Athena, it sounds like a little bit of good science is being done on psychopathy, but the weight of the poor science, social bias, and idiocy is not in that camp.

I've been having that experience in reading on autism too. I spent a couple years post-diagnosis reading, making a few contacts with researchers, etc. The only helpful - and I'd say openminded - contacts have been pretty much been other autistic people, especially women for the issues that differ somewhat based upon sex.

Autism doesn't generally have the "serial killer" connotation in the public mind, though there is a bit of that in the media at least, and some folks lump everything "abnormal" together anyway. There is a strong "only 8-year-old white boys have it" assumption that's connected to a 30-year-old chicken-and-egg problem with scientists assuming false stuff and using terribly selected populations that confirm their bad theories. Plus probably some ego in some of the most "expert" scientists that won't let them repudiate their former theories. So young scientists keep quoting it and studying it. There is tons of money involved in forcing young autistics to act more "normal" so their parents feel less guilt, e.g. forcing camouflaging onto autistic kids without knowing anything about the harm that unacknowledged camouflaging can do. (Yes I am not against having the tools, just forcing people to use them nonstop in some contexts with no support etc. etc., and autistics have very different emotional setups from both NTs and psychopaths on average I think.)

I have come to find this nauseating and am sort of avoiding it all now! Hoping to have the mental energy to get back to it more.

Some things I found bizarre... The researchers I have met at some local autism research symposia etc. didn't want to hear from actually autistic people about our experiences; I think I might have gotten lumped into some sort of "activist troublemaker" category in their brains. Or something totally different. But they didn't want to read or learn about autistic "camouflaging", which has some similarities (I think) to what Athena learned to do with "masking".

For autistics, "camouflaging" can be very emotionally stressful and likely connect with brain responses similar to ptsd. I can dig up some of the articles about that if anyone is interested... since many kids have experiences consistent with what is though to lead to ptsd anyway, it's hard to tease all this apart... but many autistics have such ramped-up sensory input without parents/families/schools/therapists/etc. understanding or "believing" this, that autistics can have many additional avenues to get experiences like that. Numerous autistics I've spoken to concur, I cannot prove anything about this of course and we don't have scientific consensus on our side.

The autism "experts" seem to mostly be concerned with how "normal" we act; so our autism is considered "milder" if we camouflage better, and the standard for ways to help us is always the NT norm no matter how useless it may be... we are not considered experts on ourselves because our perspectives are defective, I guess? Lots of groups have been in that position in the past though.

I would not have said any of this 10 years ago before knowing much of anything about autism (I only researched it post-diagnosis), but I did know that a lot of things weren't helping my stress levels yet some things did. Now I have contacts who can help with ideas on that.

But... how to move the monstrous leviathan blob of terrible science on "neurodivergent" conditions... Youch.

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